
Keep your eye on the ball. Great advice! Okay. Now which curvaceous, shapely, object(s) are we supposed to be focused on?
Lorna couldn’t define herself as healthy anymore, or could she?
When I rescued a seven-month old mutt mixed-breed named Wolfer in the early 1990s, I thought his panting, groaning, and inability to stay still was because he was crazy hyperactive excited to have a loving home. I was wrong. He had severe congenital hip dysplasia. My vet recommended that we put him down, but I couldn’t do that. I was in love with him. With medications to ease the pain (his not mine), the vet said he might live 3-4 years. I decided to give him the best life a disabled dog could have. Wolfer had other plans. He didn’t see himself as a disabled dog—just as a dog. He ran and played despite my efforts to stop him from having fun. I finally gave up scolding him for playing and just let him whoop it up. We were both a lot happier and he lived (with the help of medications and healing touch) to be 12 years old.
So what’s Wolfer got to with my dizziness? Wolfer taught me many lessons in his lifetime, but the one relevant to this story is about perception.
No one could see the three-ring circus happening inside my head, except for the occasional stumble or bumping into a walls. Just like when I was schnockered, I covered up my dizziness so that I appeared normal to everyone around me. Teaching about “labels” and “stigma” for years, I knew what being defined as an “invalid” meant. Just look at that word: in-valid. When people see you as ill, they stop seeing “you” and only see the illness. That’s what I did to Wolfer, until Wolfer set me straight.
I was determined not to define myself by an illness that was so mysterious that, back then, had no clear cause, treatment, or cure. (NOTE: In America, research lagged behind other countries like the UK, but today a lot more is known about Chronic Fatigue and Immune Dysfunction Syndrome—CFIDS. Ten years ago, lots of people had something truly miserable, but researchers only took notice of this illness when Cher came down with it, figuring it was more than exhaustion from all that wig tossing and fighting with Sonny.)

The Poster Woman for CFS in America back then. I wonder why there wasn't a "Little Black Ribbon" campaign?
To prove to more than just me I was Healthy-With-a-Few-Minor-Issues, I adjusted my work conditions to accommodate less classroom teaching. Fluorescent lights and the constant motion of students whacked me out. Why couldn’t they just sit still in the dark? I developed online versions of my classes and took on administrative duties in lieu of teaching. This gave some of my colleagues the impression that I was trying to show them up, something a few of them feared anyway. Unbeknownst to me, a movement was afoot to finally put me out of their misery in my place.
I joined Chuck’s anemic small Methodist church choir. They needed a soprano. Well, they needed more than a soprano, and I needed to prove I was healthy. I loved to sing and doing this with for with Chuck couldn’t hurt. All went well until the part-time conductor/organist/pianist quit and Chuck took over. But that’s another story.
While I was busy seeing me as Healthy-With-a-Few-Minor-Issues, the people around me, it seemed, saw an in-valid person.
Chuck saw a responsibility an invalid who needed a hospital bed caretaker. I appreciated and loved him for all he did. He hugged me and held my hand, but that’s the closest he got. Heck, I was dizzy, not contagious.
Family and friends saw my unimaginable suffering and felt badly for me. I appreciated and loved them for it. They pitied me. My mom said more than once, “Lorna, of all the people I know, you’re the one who needs your brain the most.” I laughed, telling her, “Mom, everyone needs their brain.” You gotta love my mom.
Alex didn’t treat me like an invalid. He withdrew. Maybe he was just at that age when boys disconnect from their mothers every adult (17), but our relationship was unique (and I’m not just remembering the car-dancing). I believe he didn’t want to think about his mom as ill, so he retreated to neutral, sterile ground. Of all the losses I experienced during this time, losing my silly close relationship with Alex hurt the most. I bet he can say the same.
A small but powerful gang of faculty were plotting my professional demise, should the brain tumor and CFIDS not do me in first. If they put half as much energy into their classes as into foiling me, imagine the all the higher learning that could’ve happened at that college.

Don't worry, Gert, even if they catch us, we have tenure. Plus, we'll slap an age discrimination suit on their sorry butts if they give us any lip. Our classes? Don't worry. The students never miss us.
Along with the dizziness, I developed endometriosis, a precancerous cancerous condition in the female-plumbing area. I had a hysterectomy and started taking artificial hormones so I wasn’t shot-putted into early menopause. My “Healthy Lorna” crusade was losing steam.
In April 2003, Boston Neurosurgeon informed me that my innocent little Menigioma was, instead, a gnarly cancerous Ganglioma. Could I come in for surgery next week? I was preparing for finals. I said no. Chuck was livid. Certain that the Gang of Liomas would chill until after finals, I scheduled the surgery for June. Did I mention Chuck was livid?
Keeping my healthy perspective was tough.
Lorna faces brain surgery. What? It’s not like it’s rocket science…







Oct 25, 2011 @ 06:27:35
Great response, Christine! Don’t ever underestimate yourself. 😉 And , as always, thanks for your kind words…
Oct 25, 2011 @ 00:24:44
While it’s fun coming late to the party so I can read the other comments, it leaves me without an original one of my own. You have some very cool and insightful readers Lorna, but I’m not surprised. They are, after all, following a very cool and insightful writer.
Oct 23, 2011 @ 16:11:36
I’m so glad you found the answers you were seeking in my little tale. Yes, these stories are whipping the dickens out of me. That’s why I have to break them up with other posts–give myself a rest from them. I need to finish this, but I need to pace myself, too. I know you know what I mean.
Namaste,
Lorna
Oct 23, 2011 @ 04:43:17
You know – I think I’ve said this before but it is worth repeating. There is always a lesson inside of all of your tragedies. I wondered why I was isolated by many dear friends and family when I became ill a few years ago. You have opened my eyes and given me answers. Thank you …
By far, this was really the saddest. I know there was humor in it; however, the fact is that there underlying misery you were hiding. It must have been difficult. You were – alone in a crowd – is how it feels. Thank you for writing this part. I’m sure it was strenuous …. AND … bless you for your perseverance and resilence.
Heartfelt,
Izzy
Oct 22, 2011 @ 22:52:59
I’m deeply touched by your response. Thanks.
Oct 22, 2011 @ 16:12:40
And it isn’t over yet… (not that this is a contest or anything). 😉
Oct 22, 2011 @ 16:09:26
I can’t wait to read yours–I want an autographed copy! 🙂
Oct 22, 2011 @ 02:36:03
Love your pluck! Again, we share some “defining” challenges that continue as we breathe, I’m sure, soul sister. But then, they really have made us the women we are and without them, I’m not sure I’d be so multi-faceted at all. What good is being a member of the Crazy Chicks Club if we can’t just go crazy once in a while, lol. So glad you are so together after all that! Thanks for sharing so much of your journey with us. I share snippets online but there is so much more that hopefully will be purged once and for all in the book, if I can ever get it done, LOL. Love reading what you write and can’t wait to read yours 🙂
Oct 21, 2011 @ 19:27:17
I thought I had a rough life, but you’re surpassing mine! Hands down. Glad you’re able to relate it now. 🙂
Oct 21, 2011 @ 16:33:39
Al, it’s rare that I’m speechless, but I am. It’s comments like yours that made me want to share my story in the silly way I’m sharing it. You just gave be the kindest and biggest shove I could ask for. I’m going to get my story published and you’re getting an autographed copy and your name in the acknowledgments. That’s a promise from your pal, Lorna!
Oct 21, 2011 @ 16:26:11
Thanks Molly. I just did what I felt I had to do at the time. Keep going…
Oct 21, 2011 @ 16:25:25
Spoken like a woman who knows a great deal about courage and life… 😉
Oct 21, 2011 @ 16:24:44
I’ll be writing a little “side story” about my time in the choir. It was a hoot. As for those few faculty members…most of my colleagues were great or at least not harmful. A few were downright malicious. Those few had huge egos and very poor self-esteem. They could only feel good about themselves when they put someone else down. Putting me in my place made them feel very powerful. But they could only do it when I was at my most vulnerable. I never cared about power or glory–just about being the best scholar and teacher I could be for my students and the college. They didn’t get that. It’s sad, really.
Oct 21, 2011 @ 16:20:04
I like to say that everyone has their “something” that they deal with. This is mine, or these are mine… 😉
Oct 21, 2011 @ 16:18:31
Yes, unless you have a chronic condition, you don’t appreciate the stigma of being defined as something other than yourself.
Oct 21, 2011 @ 16:17:04
Yes, Mr. Wolfer got me through some pretty tough times. He was a wise, wonderful old soul.
Oct 20, 2011 @ 21:56:10
Oh, gosh! The saddest part was reading about how your son retreated from you–it’s so hard for kids when their parents are ill.
I love how “Buddha” Wolfer taught you a very valuable lesson. Our animal friends can be so cool.
Oct 20, 2011 @ 17:45:26
A lot to reflect on in this one for another “in-valid.” We show them!
Oct 20, 2011 @ 17:19:35
My doctor expressed the same idea about us walking around with all sorts of weird things living off, on and in us. That discovery can be an unwelcome side to testing. My high school friend who just retired from teaching nursing at a local college for years says the same thing. She listed off a number of her little tenants she keeps an eye on. Who knew?
Modern technology can scare us to death. No pun intended!
Oct 20, 2011 @ 16:34:58
Now, I’m intrigued as to what happened when Chuck took over the pianist gig. If this doesn’t sound like an episode of Everybody Loves Raymond, I don’t know what does. 🙂
As for the faculty trying to do you in during this time when you’re challenged with health issues, well, it hurts to read how cruel people are but sadly, it’s a reality.
Oct 20, 2011 @ 16:33:25
Inner strength can sneak up on you, it silently grows while you think you are weak. What other others call amazing, you just call it life.
Oct 20, 2011 @ 16:20:49
A remarkable response to a roller coaster of challenge, truly inspiring actually, cheers catchul8r molly
Oct 20, 2011 @ 15:14:22
Dear Lorna,
Are you sure that all these events are not an accumulation of events that occurred in the many lifetimes you have lived up til now? This is just too much for one lifetime, don’t you think? While I jest, I’m sure that your Buddhist beliefs were and are instrumental in helping you through this.
You are a strong, strong person who is very adept at relating these difficult times with humor a minimum of pathos. You may be out of teaching professionally but the “prof” lives on. I count myself as one of your fortunate students.
Your pal, Al
Oct 20, 2011 @ 11:49:53
Yeah, my body was trying to teach me a number of lessons. Enough already! 😉 But it wasn’t done yet…
Oct 20, 2011 @ 11:48:36
Thanks, Peter. I think a lot of people found out that underestimating me was a mistake (including me!). That theme will return in future blogs, trust me. 😉
Oct 20, 2011 @ 11:43:54
A doctor once told me that everyone has something going on with them that they’d rather not know about. The more testing we have done, the more they find! At times, I felt like my body was falling apart. But, I’m here to talk about it, so that’s the good news… 😉
Oct 20, 2011 @ 11:41:41
“Wasting an inordinate amount of it feeling sorry for ourselves is perhaps more tragic than the afflictions we encounter and have to deal with.” Wise words, my friend and very well said.
As for my past preparing me for what I was facing, you’re so right. That’s why when people ask me if I would ever change anything about my past, I emphatically say NO! Every bump and bruise had its own valuable lesson and shaped me into the person I am today. I wouldn’t change a thing.
And I’m not sure exactly how much I’m going to say in the blog (versus saving it for the book) about what my so-called colleagues did to me. Suffice it to say that they were smart enough to see it was easier to push me down a flight of stairs (metaphorically) when I had a difficult time standing still without wobbling (literally).
Oct 20, 2011 @ 11:34:30
The way I look(ed) at it, I had two choices: curl up in a ball and shrivel up or forge ahead into Lord knows what. I figured forging ahead was better. I mean, how much worse could it get. Little did I know… 😉
Oct 20, 2011 @ 11:29:22
You have your challenges, but in reading your posts I believe that you’re an example of life at its best despite the challenges. Most people would want to just put the covers over their head. You keep going. Keeping it together is tough … you can do it. You are doing it.
Oct 20, 2011 @ 08:42:46
It occurs to me that much of your past shaped you and served you well now, at a time when it appears you most need it. Wolfer is a fine example from which to draw. So too is the fact you managed to survive being newly-wed, getting pregnant, trying to finish your PhD, and moving to another state, all raining down on you at the same time. Yes Lorna, these past experiences forged into your persona seem to be innately guiding your relative calm in a sea of troubles.
I love that you refuse to accept the concept of being an invalid. Life itself is a terminal disease. We all will arrive at the same destination some day. Only our paths are different. It’s what we choose to do with the temporary time we’re given that matters. Wasting an inordinate amount of it feeling sorry for ourselves is perhaps more tragic than the afflictions we encounter and have to deal with.
I’m shaking my head at the pettiness of your colleagues (term used loosely) at the University. Good grief!
Oct 20, 2011 @ 07:02:33
Wow. With all the stuff you had on your plate and now this?! See, this is why I don’t go to the doctor…they can’t tell me everything that’s wrong with me ;). Of course, I don’t think I have anything life threatening…nothing that interferes with my daily activities. Unless you count no common sense…..
Oct 20, 2011 @ 06:30:24
Heavens, if it’s not one thing it’s another. I agree with you the dog had a lot to show us. Living the fullest life you can with what you’ve got can easily be dampened by the perception of others. My impression though, is anyone who underestimated Lorna, and her determination to make the best of what she had was in for a rude surprise.
Oct 20, 2011 @ 05:37:39
Good grief – your body really did a number on you, didn’t it?
I didn’t know that about Cher.